I know! I bet you were wondering where the heck I was, when the next Tommy update would come and whatever else - well, here we are again at the Dr House for another treatment. After this one, there is only THREE more! I cannot believe we are down to final three!!!
Tommy has been such a strong boy! He's been a wonderful teacher and my rock! The mountain he has climbed amazes me. Tommy started this being my baby boy and looking like a baby boy...now he's only 7 months older, but so much wiser. I've always joked since he was born that he is an old soul, that's not joke...he is an old soul.
His hair, eyelashes and eyebrows are gone, his butt cheeks sag like an anorexic, can count the bones in his back like a dinosaur and see every vain in his bald little head. I still think he's a very handsome boy - I tell him all that time that he's "SEXY" and he laughs and says "no mom, YOU are!"
When we go out in public we have him put on a hat but he usually gets to a point where he wants to take it off. That's when the stares and turning heads start. Tommy takes it for a while and then he get annoyed and says something to the effect of "why are all these people looking at me!" I have ALWAYS told him it's because he's so good looking, or cute or sexy and they want to get to know him. He might giggle and then let's it go.
Tommy will be getting a blood transfusion before we go home tomorrow. Daryl's parents and nephew will be here for Turkey Day. Daryl's making prime rib - YUMMY! Yes, it does read DARYL will be making!!! That's right! Can thank our new friends Tim and Andrea for the chef bug. It's gotten him so well that for our 12th Anniversary (on the 24th of this month) I got him a Thermapen thermometer and I got him a subscription to Cooks Illustration for on line and the magazine.
Tommy and Maggie both like to join whatever happens in the kitchen so we'll be sure to have mini projects for them too. Tommy and I were talking about when Tom, Barb and Jordan are here we'll put up Christmas lights and he and I will stay inside cuz he cannot be outside right now with no immune system - but we'll make them cookies. He was SO excited about that! He cannot wait to see them and make them cookies. You should have seen his face light up about the thought of it all - it was one of those that I'll keep burned in my memory for life! And Tommy's talking about sleeping with Jordan on the top bunk and staying up late.
I have the BEST co-workers!!! THANK YOU, Windermere for ALL the support, love, dinners, and the fabulous "Pampering" night you hosted while showering me with gifts of love and luxury! And the dinner Tim and Andrea hosted for us - OMG, was out of this world! I'm fighting for words to express my sincere love and apprecaition for all of it and how we feel for each of you. If you are a realtor in WA and aren't in my office - we need to talk! The ONLY office I will ever work with is the Windermere R.E. South Inc AND Debra Snoey's!!! I'm rich with friends and support, thank you!
December will be a little challenging with the final treatments and Daryl's training schedule, especially for the five day treatment (that's when Daryl will switch to a night time schedule). We need someone here for that week (12/2 - 12/9) and we'll provide the airfare for anyone who can come up and help. Basically it will be taking care of Maggie the entire week - getting her ready, to and from daycare, dinner, bath and bed time.
There are still a TON of pics that need to be posted, promise they'll be coming soon. So much to do, so little time and the last seven months has been like an onion - layers upon layres of the emotions and it's a greiving process for all of us still with every corner. We see the light and we are clawing our way out of the tunnel and appreciate ALL the prayers - please keep them going.
xo
<>< K
Monday, November 19, 2007
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1 comment:
IT WAS SO GOOD TO HEAR FROM YOU AND TOMMY AS I KNOW YOU TIME IS VERY PRECIOUS DOING WHAT YOU HAVE TO DO. SUCH GOOD NEWS TO HEAR TOMMY HAS 3 TREATMENTS LEFT AND WITH GOD'S HELP IT WILL GET IT BEHIND HIM AND MOVE FORWARD. HE IS SUCH A BRAVE AND COURAGEOUS LITTLE GUY AND I'M SURE EVEN BEEN AN INSPIRIATON TO YOU AND FAMILY.THE PRAYERS ARE STILL GOING HERE IN KC. WISHING YOU ALL A THANKSGIVING AND JUST TO HAVE TOMMY HOME WILL BE GREAT. LOVE AND BLESSINGS AUNT BOOTSIE
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